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NCRAR: Hearing, tinnitus and balance research ... with real life impact
These are real patients with real stories to share. They are thriving! Here they discuss how they discovered rehabilitation for hearing loss and tinnitus, and its importance for their quality of life. Click on the video link of the person below to hear about their experience.
He did not know about these possible side effects until years after starting treatment for CF
All CF patients should be told about possible hearing loss and monitored
“I was riding in the car with my fiancé next to me. Her parents were in the front seats, the windows were down, the wind was blowing in and the three of them were having a conversation and I didn't pick up a single word, couldn't participate at all.” -Mike
Deb received ototoxic treatment during two bouts of ovarian cancer
She was not evaluated or monitored for possible ototoxic effects during her original treatment and there was no ototoxicity program in place
It is vital for those undergoing ototoxic treatment to be a part of a monitoring program, to minimize side effects that can greatly impair functional communication and cause isolation or distress
“If you’re not hearing well and you don’t treat the hearing loss, you tend to be more isolated and it can also enhance or escalate the cognitive issues that you may already be having with chemo treatment.” -Deb